Author
Hi my name's Kate aka CRPSgirl.
My blog is intended as a space to write openly and honestly about being a an active 25yr old girl living with Complex Regional Pain Syndrome.
My aim is to raise awareness about the painful nerve disorder. I will share with you the facts, my daily life, how I cope, treatments, helpful links, and some positive healing tips.
I hope my blog will inspire other people with chonic illnesses to keep positive, and help by knowing you aren't alone.
Please check out my blog, and comment or email me too if you like. I would love to hear from you! Thank you for reading! :-)
Hypnotherapy/ Benefits/ New procedure
I haven’t wrote for ages, because I’ve been pretty ill… but I’m feeling a bit better now, so I thought I’d try to fill you in on what’s been happening. During the last couple of months there have been a few things going on in my life… 1. hypnotherapy – I had 3 sessions … Read more
Graded Motor Imagery
I found this video on www.noigroup.com; Neuro Orthopaedic Institute (NOI) Australasia. A useful website on neuroscientific research, that my physiotherapist told me about, as part of my treatment. The exercises on Laterality training, Graded Motor Imagery and Mirror therapy.. all relevant for CRPS treatment.. with the brain as it’s main focus. This video covers all of these … Read more
Ketamine come down/ bladder operation.
I’ve been coming down off Ketamine for about 2 months now..and I’ve still got another 2 months to go. It’s been horrible, frustrating, stressful, painful and I’ve felt like crap the whole time, but at least I’m getting off the stuff! The day my Pain Specialist told me to come off Ketamine he said there’s a big … Read more
Neuroscience, meditation & creativity
I’ve been reading a lot recently on neuroscience, meditation & creativity. I’m really interested in neuroscience, in particular nerves, pain and CRPS. I’ve also been given advise from my physio, who works specifically with people with neuropathic pain, about CRPS and brain exercises I can do. Neuropathic pain is caused by a problem with one … Read more
‘Stupid things some people say’..
I would like to write about ‘mobility and independence’, because they are both important things that people with disabilities may have problems with. I don’t call myself disabled- probably because my neuropathic pain was brought on by a snowboarding injury, and surgery on my knee, so I call myself ‘injured’ still. Of course I can … Read more
I hate to moan, but…
Hate to moan but….I thought I’d write an update on coming down off the Ketamine. It’s a nightmare! I’ve been feeling so ill; light-headed, nauseous, exhausted and generally feeling crap! I’m not sure wether it’s just because of Ketamine withdrawal, because I get the same feeling every morning and evening just before I take my other medications, but … Read more
Ketamine hell
Some bad news this week. I spoke to my Pain Specialist, and he’s told me to come off the Ketamine because he’s worried it could be causing long term, IRREVERSIBLE bladder inflammation and damage!! Cheers Dr Platt, couldn’t have found out that information before prescribing it to me!? Since starting the Ketamine alongside the Oxynorm pills, … Read more
Indy
So, I’ve been extremely busy since my last post! I got my gorgeous little westie puppy, ‘Indy’, and I’m soooo happy! It has been a proper struggle the first few weeks though, what with my mum being away on holiday as well. The first few weeks felt like actual torture, in terms of my knee, not … Read more
Pets as Therapy
Not strictly on the CRPS topic.. but I wanted to share with you my excitement of recently getting a little furry friend. He chews, eats a lot and is hyperactive, yes, he’s a puppy! I’ve been seriously down lately with the situation with my knee looking increasingly hopeless, so I am extremely happy to introduce my little … Read more
Physiotherapy
Hello, I realised I haven’t written for a few months.. so here’s a quick update.. Medications: I am still taking the Ketamine medicine, and so far I have been feeling a good effect from it. It definately doesn’t take the pain away, but it takes the edge off it a bit. My pain specialist has been progressively upping … Read more
Invisible Illness Week
